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New Doc, Now What?
6 Replies
SerenityNow - February 18

Hello everyone. This is my first post here.

I don't even know where to begin, but I'm sure you all know this story without me even saying it :( So, I'll just cut to the chase and make a long story short...

Switched docs last Oct, then moved in Dec, so now another new doc. New docs won't prescribe pain meds. What I've been through in the last 6 months...well, I can't believe I survived some of it.

What I really don't understand is the doc's being so uncooperative about pain meds. With my original doc I had been on Vidocin 5/500, 4 x daily...for 7 years. My dosage never increased. I never had pills that weren't accounted for. I was offered Oxycontin and I refused it. Vicodin worked for me, it took away my pain, let me live a normal life and be productive *every* day. I had none of the side effects.

I have been off of Vicodin and on Naproxen 500mg, 2x daily, for a month+ now. I hurt all the time and am getting nothing done, it's horribly depressing. I take Flexeril 5mg sometimes 2x a day for some relief. Sometimes that's enough so that I can get dishes done, vacuum or do laundry..but usually it just makes me fall asleep. Some days, like today, it does nothing.

If something works for someone why would you take it away? I was riding dirt bikes, riding horses, digging holes for flowers in the garden and my house was it's a chore to get up and feed the dog.

I've told the docs repeatedly that I don't care what meds I take, as long as I'm not in pain. It's not about taking a specific med. It's about being able to function and do what I need to do. I can't even go get groceries. Getting showered wears me out. The thought of having to walk around in a store wears me out.

I just feel like I'm at the end of my rope and don't know what to do. I have people who rely on me who, somedays, get very tired of seeing me sit on the couch...and I don't blame them one bit. I'm getting tired of hearing me say, "I didn't feel good today, I'll do it tomorrow."

What do I do at this point? Someone please tell me what I am missing, because I don't get it.


Fantod - February 19

SerenityNow - I get it. Unfortunately, there are still "pain specialists" and/or doctors out there that think narcotics are the root of all evil. They would rather violate the Hippocratic Oath than actually relieve the patient's suffering.

The boogie man in this whole scenario is addiction. They don't want addicted patients. My point is who cares if the patient is addicted as long as they have some quality of life. If all else has failed and narcotics work than what h*ll is their problem!?

You have got to find someone else who is willing to work with you. If you are being a responsible chronic pain patient and using the medication properly it should not be an issue.

Call your local hospital and ask for the physician referral service. See if they can match you up with a pain management specialist (get a couple names). Research them using Google and see if you can get an idea of how they operate. Take a complete copy of your records with you to save time and money. If there is a university near your home, see if they have a medical school with a pain clinic. The longer a chronic pain cycle continues, the harder it becomes to manage or stop. The sooner you find help, the better.

And, when you do indentify a doctor who is going to help you, report the other one in writing to your insurance company. Save another chronic pain patient from having the same experience. Good luck to you and take care. Keep in touch so we know how you are doing.


mdak - February 19

serenty-now almost all pain clinics require a referal from your dr. Ask you dr that I heard they work with FM and have different ways of treatment. It he doesn't write one, then find a new dr. I stop my meds before (narcotics) and that is what they do. your body cann't function without them. Your body comes very dependent on them. I too couln't have a life because of chronic pain. Pain clinics have so many different treatments. I am off the narcotics and taking a medicine for opiod addiction. It bloks some pathway in your head that makes you not feel the pain. and doesn't cause you to have cravings. I hated the narcotics such as vicodin because if you were not in pain your body had withdraws in not taken. This pill doesn't do that. I take one a day and it last 24-72 hrs. Yes it has warnings, but others do to. This has been a miracle drug for my pain. My depression has made great turn around because My pain is under control. I hope you can find a pain clinic around. Most regular dr's now dont want the liability on writing the amount we need.


SerenityNow - February 19

Thank you for your response. I do understand that addiction is the boogie man in this whole scenario. What I don't understand is that I feel as though I've *already* proven and demonstrated responsible medication management on my own. No doc ever told me to keep a log of my meds, but I did...and there's a ton of other examples I could give.

What really gets me about this is that I've seen real addicts. I formerly belonged to a church that had an outreach to addicts. I've seen adult women who weighed in under 100 lbs, at 5' 9"...and their teeth were falling out. Yet, all they cared about was getting pills...not because they'd be in pain w/out them (from something they didn't cause themselves), but because they wanted to space out and be numb. It infuriates me that THOSE ppl are given meds while others with real issues are left to suffer.

I will take your advise and do more homework on docs in my area. I've really got nothing to lose at this point, lol. I need to find out more info about reporting former docs to my insurance co.


SerenityNow - February 19

Thanks for your post and the points that you made. I've recently talked to 3 different docs and done much research online about opioid addiction/dependency/withdrawal. By no means am I an expert, but I think I at least have a handle on my own situation, lol. (had one doc get mad and tell me I was "over-educated for a person who just walked in on off the street.")

What I am experiencing now is not withdrawal, it is FMS not being treated properly.

Even if a person has developed a dependency or an addiction (and there is a difference), your body will go back to functioning normally...after a period of detox (withdrawal). How long withdrawal lasts is dependent upon many things: first what drug has been taken, then how much has been taken and for how long. Also, the state of health and well-being of the individual, support offered, etc.

After detox and withdrawal are over then the true state of health and well-being of the individual will be seen. This is where I am at now. (and I must say that "withdrawals" for me was a headache...and there was no weaning down on the meds either. I just stopped taking them. I've seen real detox and withdrawals. I missed that bus, lol.)

I'm not certain if I read your post correctly, and maybe I misunderstood, I apologize if I did...but if you're telling folks that there is no hope of ever getting off of opioid drugs (other than what you are taking) & functioning normally, that's just not true, please don't say that. There are too many options out there, please don't take ANY hope away by saying such things. If you've found something that works for you and you can manage the risks/warnings, then celebrate that...and allow the rest of us to do the same please.


January - March 1

Hi Serenity - I just answered your post under discussions. I think you and mdak had a misunderstanding (if you read her other posts, you'll see). But about your issue on the Vicodin. I can't believe they took it away after years of responsible use and gave you Aleve. Ridiculous!

I wish we would all get militant and argue more with idiot doctors. A lot of people use narcotics very responsibly. Chronic pain people especially are not interested in getting high, they want their meds to work and relieve the pain so, as you mention, they can live a normal life!

I've researched medical books about treatment of pain, and they all say that in responsible people, the use of well-monitored opiods is a good option. For those of us who can't tolerate the antidepressants and other "newer" drugs, it's the only option! There are doctors out there who are compassionate and will work with you, but you have to work to find them. Ask around your community, see if you can find anyone else with chronic pain or fibro, they might know a doctor.

If you had a regiment that worked well for you for seven years, I don't know why that idiot would take you off it and change your meds to things that don't work for you. You might want to go back and argue - but only you know if this is a doctor who is receptive to working with you.

And I agree, if they are supposedly "treating" fibro or pain - and actually making it worse, file a complaint with your insurance company and with the medical board.

Best of luck to you. Hope you get back on your feet soon.


Noca - March 3

Fire the doctor ASAP and get a new one. He/she obviously isn't doing their job to just give you some OTC crap for your chronic pain.



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