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LadyTiger - September 3

i posted a post under support but im not getting that many replies. thanks to the people that did reply. but i reaally cant take this anymore. im so tired all the time and in pain. noone seems to undestand what im going through. i dont know what to do or how to show them. im thought of as lazy but im really not. or when i try to take a nap i always get a comment like your going to sleep? and i forget things way to much. and i forget about things and dont say something and then im classified as a liar.. sooo upset i want to cry


kvc33 - September 4

Hi Tiger, I'm not sure who you are referring to in your life that is not being supportive or understanding. Most of us have dealt with at least one family member or friend who has not believed us and caused us emotional pain. We find that getting such people out of our life is often necessary because we can't take the added strain of criticism. It seems easier to get support once you have a firm diagnosis because then you have 'evidence' that you are not making it all up. You can try pointing out the change in yourself and telling the person all the symptoms you are having but not at the time when they are criticizing you. Tell the person that you are very ill and although you don't yet know exactly what is going on, you really want to find out more than anything. We here do know what you are going through as do millions of others. We have all had severe symptoms that have left us baffled. We go to doctors thinking that they will tell us what is wrong and they usually say that they can't find anything therefore we must be okay but we know that we are not. On your other post I read that you are having pain in many areas and I think perhaps you have issues with your spine. What kind of doctors have you seen? Have you been in an accident of some kind within the last two years? How did things all start? Can you trace it to a certain point in your life such as a viral infection, stressful life change or trauma? It often starts that way.


lucky13 - September 4

First are you receiving treatment from a doctor to help with your symptoms? That is a first step, then see if you can get this person to go to the Dr with you so they can hear from an expert how tough Fibro really is.
My husband has been un-supportive from the beginning. He told me the day of my diagnosis that he thought it was a crap diagnosis from the Dr cause he didn't know what was really wrong with me. Then he pretended to be supportive until we had a fight and he threw it in my face how he thought I was lazy and used the fibro as an excuse.
Finally he went to my new Dr with me and the Dr explained how important his support is because stress leads to flares. The Dr talked about the symptoms and how I probably feel and that really opened my husband's eyes, because it was like the Dr was describing me personally.
Also, maybe go to your library and see if they have any books on fibro, I like Fibromyalgia for Dummies. My husband bought it for me, but I couldn't get him to read it. But if your "loved one" would read it, maybe that would help them understand.

Also do you snore? If so talk to your Dr about that. I had no idea I had sleep apnea, my husband never heard me stop breathing, but a sleep study showed that I do have it and now that I sleep with a CPAP machine, I sleep better, in turn helping me to feel better.

I'm sorry you aren't getting the timely support you need, sometimes the boards can be slow. I'm guilty for not coming by on a daily basis.

Hang in there, the stress from the lack of support and rude comments will actually make you feel worse. So try and cut any stress out that you can.
Good luck


LadyTiger - September 5

Kvc33 - I have talked to my man and told him of all my changes in myself and the symptoms of fibro and what im having. im tired of dotors saying they cant find anything after tests and that im fine.. i know im not. ive never been in an accident. it started about two years ago. just small things at first then now are sooo much worse i cant stand it and cry because of the pain sometimes. I was sexually abused,mentally,physically, and emotionally from a very small child until 16 from both parents.. i was thrown off a horse a few times and kicked in the groin by childhood was extremely a mess.. other than my F** up childhood i havent had anything happen really in the past few years.

oh, when i was around 7 yo. i got extrmely sick on PCB's that was in the water... ill never forget that.. ehhh


kvc33 - September 5

Your history explains your condition to me. Long term stress causes adrenal exhaustion. I just had my cortisol levels tested and my adrenal glands aren't able to produce adequate cortisol which is called the energy hormone. A lack of it will also cause pain. Look up hypoadrenia and you will find many of the fibro symptoms there. I have most of them anyway. Being thrown off a horse could have certainly wrecked your spine. Sometimes the body copes well for a long time before it finally crashes, which I believe is the case with you. It doesn't matter that you can't remember any trauma over the last few years, you may have finally succumb do to a virus or something else that you are not aware of. Regular doctors don't test for cortisol properly, a saliva test must be taken four times a day because the normal rhythm for cortisol is for it to be high in the morning and very low at night. Any change in this pattern can cause problems. Find a naturopath who will work with you on this. I also believe you are going to need extensive therapy because of the abuse you suffered. Many of us fibro sufferers had difficult childhoods, I started suffering from depression at the age of 11 and have generally been unwell most of my life. I'm not at all surprised that you are exhausted and in pain after reading about your tragic history. I'm so sorry that happened to you. You need an amazing man in your life and I'm not sure you have one. I'm very lucky in that I do. You need healing in many areas and unfortunately no one else can do it for you. Seek help from people who can help you get through this and if your bf is not able to be supportive you may have to part ways.


January - September 5

HI Lady Tiger - I left you a loooong post under support. There is a certain subset of fibro people who have been abused as children. (I'm one.) We hold the constant stress in our bodies, and eventually this helps to break us down. You need good therapy (with an active therapist who doesn't just sit there and listen - they don't help much. A good therapist will ask questions, point out patterns, and sometimes confront you in a way that causes pain because of the issues involved. To grow you have to bring these things up and grieve your losses. Then it's your choice if you want to move on. You can, but I don't know that we ever really recover from child abuse - like you always have scars, and maybe nerve damage, if you've been shot. But you can learn to live with it better. A good therapist is "tough and tender," and will support you through the hard stuff as you pull it up and work it through. When interviewing therapists, ask for someone who has been through at least 5 years on therapy themselves to work out their own problems.) A wonderful book is "The Body Never Lies" by Alice Miller - she writes about child abuse in a very original way. There is also an association, Adult Survivors of Child Abuse.

kvc is right - adrenal exhaustion is common in people who suffer abuse, so try to get tested. You will feel better if that gets treated. There are supplements you can take to help.

I was thrown from horses too a couple of times - I think that added to my other back injuries, but they didn't bother me a lot until I got older - the injuries occurred from the time I was a kid, but were never diagnosed - things like falling on my butt, falling off my bike, etc. In fact, some people think that if you have been beaten on your back as a child, that can lead to spinal injuries. That makes a lot of sense to me, I think it is true.

Glad to see you came back to talk.


January - September 5

P.S. The forgetting and brain fog is sometimes a symptom caused by a viral infection (did you ever have chicken pox? Sometimes that reactivates - it's called varicella virus.) Or something bacterial like Lyme Disease. Or by not getting restful sleep. Try to find a doctor who will test you for infections and order a sleep study for you. Like Lucky said, good sleep makes a world of difference! You can google for information by searching "fibromyalgia viral" or "fibromyalgia infectious." You can find doctors who will work with you and your own doctor.

Sorry you feel so frustrated right now. We've all been there. On your good days, you must try to learn about this syndrome, and try to find doctors who will help. Wishing you the best.


LadyTiger - September 5

after i got out of my abusive home as a child at 16 i did have counsling for a year. i think it still bothers me till this day though. i sometimes choke up in tears when i talk about it. i dont like talking about it to my man either.. i guess because maybe im afraid of being judged on my past? im not sure.

I dont know if i have sleep apnea. my man says that when i do sleep im so quiet and he says sometimes he wakes me up to se if im ok. i dont ever rember him waking me up. he says he can never tell if im breathing or not.

as for adrenal not sure about that. i dont have every one of the symptoms but have most. can you have that and fibro together?

ive had chicken pox when i was reall young like 5 or younger? but i have my shots for everything and keep up to date on them. i havent been sick with a cold or anything in a long time. atleast nothing i remeber right now.


kvc33 - September 6

You don't have to have every symptom of a condition in order to have it, in fact I think that would be pretty rare. During your abusive childhood your adrenal glands would have been stimulated over and over again in the fight, flight, or freeze response. Since it was your parents abusing you there was really nothing you could do to get away or stop it and that would have been extremely stressful along with scary, hurtful and confusing. You would know far more about it than I. The adrenal glands produce the hormones involved in the fight, flight or freeze response and if yours are not exhausted I would be very surprised. Yes, the adrenals are often involved in fibro and CFS as well as the thyroid and pituitary glands.


January - September 6

Hi LadyTiger - It must have been hard to leave at 16, even if you went somewhere safe (and I hope you did). A year of counseling can help (depending on the counselor), but if the abuse was severe and long term, you probably need much more therapy. A lot of child abuse victims need to be "re-parented" by a therapist - that means a long term solid relationship with a therapist who can fix some of the emotional damage and help you re-build a good sense of yourself and your boundaries. If you are still crying and can't talk about it, I suspect you need more counseling. Hope you have insurance that covers it. If you go, be very, very careful because there are a lot of not-very-good therapists out there. You might contact an association that deals with abuse and get recommendations from them. Also, if you don't feel comfortable with a therapist, don't stay, keep looking for someone you feel safe with. You need to "get it" not just in your mind, but in your heart and soul, that what happened to you was NOT YOUR FAULT.

Also, you need to learn skills so you will not be victimized again. People abused as children are very vulnerable to repeated abuse as adults because they think this behavior is normal - it is not. Please get it straight that it is okay to talk about being an abuse victim (when you feel comfortable). You'd be surprised how many abuse victims are walking around in silence. The people who abused you were the REALLY sick people. You deserve some loving kindness and some help. There are a lot of resources online.

I don't know how much you know about science or medicine. If not much, then you must find some kind of health professional to guide you. Sometimes a CRNP (Certified Registered Nurse Practitioner) is better than a busy doctor. They can be primary care providers in some states, and nurses are usually better trained at listening and patient care. They are sometimes better about working with you to find the right referrals.

When I said on my other post, take in information to the doctor, I meant when you find information online that especially hits home with you - where you go "Oh, that's exactly how I feel! Those are my symptoms!" and there is also some helpful medical information attached to it - print those things off. For example, you might google "child abuse and adrenal exhaustion." I just did that, and there is a lot of good reading there.

I copied the following information from the site at e-fibromyalgia, run by a chiropractor. Sorry, this is long, but I include it as an example of information someone might take in (IF it matched their symptoms) because it has some history of the condition and also some ideas for testing and treatment. Maybe others will find it interesting too. (I take DHEA every day and feel better with it. You should get your DHEA level checked by a blood test first, and work with a health professional to take the right dosage, if you need it.) Here's the post from e-fibromyalgia, but I can't include his URL:

"Retrospective studies show that the stress of emotional, physical, or sexual abuse during childhood increases the future risk of developing certain symptoms or illnesses. These illnesses include many of the same symptoms associated with fibromyalgia , including fatigue, poor sleep, chronic pain, chronic viral infections, anxiety, and depression.
Apparently, for some children and adolescents, too many traumatic or stressful events de-condition their normal homeostatic stress coping abilities. Thus, stress and particularly traumatic stress, early in life, may alter the set point of the stress response system, rendering these individuals prone to stressful events later in life.
The other insightful point about this subject matter. This most likely occurs from over-stimulation and depletion of certain stress coping hormones including serotonin, norepinephrine, cortisol, and DHEA.
Let me proceed with this short article. Research shows that patients with fibromyalgia have genetic tendencies that cause them to be affected more drastically by the ups and downs of stress. Fibromyalgia patients are also more likely to report a history of emotional, physical, or sexual abuse during childhood and adulthood, compared to other patient subgroups.
Sadly, I find that many of my fibromyalgia and CFS patients have experienced physical, emotional or sexual abuse as a child.
Stress is the main culprit in low adrenal function as well.

The Adrenal Glands
The adrenals are a pair of pea-sized glands located atop each kidney. The adrenal gland consists of 2 sections: the medulla (inner portion) and the cortex (outer portion). The adrenal glands release certain hormones that allow us to be able to deal with immediate and long-term stress. These glands and the hormones they release allow us to be resilient to day-to-day stress…... Second only to restoring consistent deep restorative sleep, optimal adrenal function is crucial for over coming low thyroid and or fibromyalgia.
Adrenal fatigue is known to cause:
O hypoglycemia (low blood sugar)
O hypotension (low blood pressure)
O neural mediated hypotension (become dizzy when stand up)
O fatigue
O decreased mental acuity
O low body temperature (also a sign of low thyroid function)
O decreased metabolism
O a compromised immune system
O decreased sense of well-being (depression)
O hyperpigmentation (excess skin color changes)
O loss of scalp hair
O excess facial or body hair
O vitiligo (changes in skin color)
O auricular calcification (little calcium deposits in the ear lobe)
O GI disturbances
O nausea
O vomiting
O constipation
O abdominal pain
O diarrhea
O muscle or joint pains

The Cortex
The adrenal cortex is primarily associated with response to chronic stress (infections, prolonged exertion, prolonged mental, emotional, chemical, or physical stress). The hormones of the cortex are steroids. The main steroid is cortisol…...Chronic over secretion of cortisol leads to adrenal exhaustion, which accelerates the downward spiral towards chronic poor health. Once in adrenal exhaustion your body cannot release enough cortisol to keep up with the daily demands. Eventually you become deficient in cortisol and then DHEA.
Chronic headaches, nausea, allergies, nagging injuries, fatigue, dizziness, hypotension, low body temperature (low thyroid), depression, low sex drive, chronic infections, and cold hands and feet are just some of the symptoms that occur with adrenal cortex exhaustion.

Abnormal Circadian Rhythm
Cortisol levels are affected by stress and the body’s circadian rhythm (sleep-wake cycle). Cortisol secretions rise sharply in the morning, peaking at approximately eight a.m. After its peak, cortisol production starts to taper off until it reaches a low point at one a.m.
The next interesting subject close to this study. Fluctuations in cortisol levels can occur whenever normal circadian rhythm is altered (a change in sleep-wake times). Traveling through different time zones (jet lag) changes in work shifts, or a change bedtime can cause drastically alter normal cortisol patterns.
Therefore maintaining or reestablishing normal sleep/wake cycles is crucial for optimal adrenal health.

Not Enough DHEA
The adrenal cortex, when healthy, produces adequate levels of dehydroepiandrosterone (DHEA).
DHEA boosts:
O energy
O sex drive
O resistance to stress
O self-defense mechanisms (immune system)
O general well-being
And helps to raise:
O cortisol levels
O overall adrenal function
O mood
O cellular energy
O mental acuity
O muscle strength
O stamina

Chronic stress initially causes the adrenals to release extra cortisol. Continuous stress raises cortisol to abnormally high levels. Then the adrenal glands get to where they cannot keep up with the demand for more cortisol. As the cortisol levels continue to become depleted from on going stress the body attempts to counter this by releasing more DHEA. Eventually they cannot produce enough cortisol or DHEA. Aging makes holding on to DHEA even tougher. Even in healthy individuals, DHEA levels begin to drop after the age of 30. By age 70, they’re at about 20% of their peak levels.

Stress and DHEA
…. DHEA helps prevent the destruction of tryptophan (5HTP), which increases the production of serotonin. This helps provide added protection from chronic stress. Studies continue to show low DHEA to be a biological indicator of stress, aging, and age-related diseases including neurosis, depression, peptic ulcer, IBS, and others.

Testing for Adrenal Fatigue
Self-Test Methods
Ragland’s sign is an abnormal drop in systolic blood pressure (the top number) when a person arises from a lying to a standing position. There should be a rise of 8-10 mm. In the systolic (top) number. A drop or failure to rise indicates adrenal fatigue. Example: Someone takes your blood pressure while you are lying on your back. The systolic number is 120 and the diastolic number is sixty (120 over 60). Then take your blood pressure again after immediately standing up. The systolic number (120) should go up ten points (from 120 to 130). If it does not increase ten points, this indicates adrenal fatigue.
Reducing stress, boosting adrenal function with a good multivitamin and DHEA will help you build-up your stress coping abilities. There are several good adrenal supplements on the market, just visit your local health food store.

About Dr. Murphree. Dr. Murphree is a board certified nutritional specialist and chiropractic physician who has been in private practice since 1990. He’s the founder and past clinic director for a large integrated medical practice located on the campus of Brookwood Hospital in Birmingham Alabama. The clinic was staffed with medical doctors, chiropractors, acupuncturists, nutritionists, and massage therapists. The clinic combined prescription and natural medicines for acute and chronic illnesses. He’s the author of five books for patients and doctors, including “Treating and Beating Fibromyalgia and Chronic Fatigue Syndrome,” “”Heart Disease What Your Doctor will not Tell You’” and “Treating and Beating Anxiety and Depression with Orthomolecular Medicine.”

So, Lady Tiger, IF you found an article like this online, and you thought it just hit the nail on the head for you, and explained how you were feeling, it would be helpful to print it off and take it to your healthcare provider. If you have any more questions, let us know…. wishing you well. You can get better! There are many treatments for fibromyalgia, you have to figure out what works for you. And, do not take DHEA (which is a hormone) without getting a blood test and working with a health care person.


Noca - September 6

Suggestions, pharmaceutical wise IMO would be... Lyrica(to fight the pain associated with FMS), Nuvigil(to fight the daytime fatigue), and possibly vasopressin/or another nootropic supplement such as Piracetam to help with the cognitive/memory issues.

Ask your doctor about these options. These should also be used in conjunction with a healthy lifestyle which includes a proper diet that minimizes intolerances, proper sleep hygiene, and proper activity levels/exercise to achieve optimal health/recovery for those suffering from FMS.


Nee_ster310 - September 12

Hey Tiger,
I would like to share an experience that me and my mom went thru. She had many doctors that shez been with. Now, My mother went to the a new doctor about 4 months ago and the doctor refereed my mom to go and order a product online to try for her fibro. Its an all natural product. She said this product has the highest antioxidants in the world. Its called Kyani. Well, I and my mother tried it at the same time with in the 2ed week I started not feeling the pain. For my mothers fibro it took a month and a half till she really felt the fibromyalgia begin to cease. Within the 3 weeks my mom started sleeping and it has been 14 years since she slept thru the night and now she is snoozing away. I asked the doctor if I can give this info to friends and family and she said its for everyone who would like to order. I call Kyani's customer service at #208-529-9872 #283378 my mom orders online at and give them the docs Distributor #283378 The three product that Dr. Baird let us know about is Nitro Extreme, kyani sunrise and kyani sunset. I just went ahead nd got my own membership #.This stuff truly works and wished that all doctors knew about this. Well, All I can say is try it for yourself. I cant believe that doctors dont know about this. There are thousands of people that needs help and this is what they need.



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