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sexual life and fibro
8 Replies
reychel - December 28

I know it is embarassing to talk about but sometimes I feel like I am the only one in the world who never feels like getting intimate with my husband! I used to love it but now... not so much. I have had fibro since I was 11 years old and now 17 years later I can honestely say that I dont think its getting any better.
Do anyone else have problem with that ( with your spouse??? )


axxie - December 28

reychel, don't feel ambarassed, I also experience the same. You are not alone, I have had this problem for years, many women have this very same problem.

Fibro and the Follicle stimulating hormone (FSH) is the hormone made by the pituitary gland, which is responsible for stimulating the egg to produce hence more sex drive. When the egg producing capacity of the ovaries are diminished, the pituitary makes more FSH in an attempt to make the ovaries do its job. Therefore, if a woman's FSH is significantly elevated there is a strong indication that ovaries are not producing egg optimally. (Testosterone polactin, leutenizing hormone (LH) and thyroid stimulating hormone (TSH) are also measured to assess a woman's hormonal status. These may reveal problems that can significantly impact egg production).

Hence no desire to have sex, if you want to bypass all this, the good doctor should just give you testerone cream and see your desire go up by 100%.

Doctor's won't give us any testerone, because simply doctor's don't study the impact it has on a man's or woman's sexual well being. They are also very afraid if they give you testerone it may develop into you having female bound cancer, such as: ovaries, uterine, or breast cancer.

The funny thing is, the cancer frequency to these cancer are not even significant, but still doctor's won't give you the testerone.

So now you know why....


reychel - December 30

Axxie, Thank you for your comment. It does make me feel better that I am not alone!!!!


Stacey373 - December 30

Hi Reychel - Oh My Gosh! I really don't like talking about this subject...I'd rather just pretend like it's not an ostrich sticking his head in the sand! LOL

I've thought ALOT about all of this and I think it's a combination of many things. For me, the biggest reason is because of all the meds we take for the fibro stuff. the pain meds alone will take all those feelings away and then you add in the anti-depressants and...well...those feelings are completely gone!

And then there's the fibro problems....I know for me, in the morning I feel like hell and it takes me hours to actually wake up and function. then at night I usually am too tired and hurting and all I want to do is go to bed, read and relax, and get some much needed sleep.

I've also got 3 kids and we usually are all pretty busy doing stuff. I have to say that the ONLY time I can even think about getting intimate with my husband is usually in the middle of the day when the kids are home and we are all busy doing other WHEN exactly am I supposed to get some alone time with my husband?!?

Thankfully I have a VERY understanding husband. And the only thing I can think of to "fix this" is to get a babysitter and actually plan a date night so we can have alone time. it sucks, who wants to actually schedule something like that?!?

anyways...I hope this helps you to feel a little better and know that you are not alone when it comes to this kind of thing.

Take Care, Stacey :o)


reychel - December 31

Dear Stacey,

I am also blessed with a very understanding husband. But I feel bad for him too, u know?
and like you in the morning I dont feel good and at night I just want to go to bed and we dont even have kids... thats another subject, I really dont want to have any now and the pill makes my fibro 10X worse. I seams that the universe is against me lol.

Take care


duhda75 - January 4

I am in the same boat as Stacey373. I also have three kids. After homework, dinner, baths/showers
and bedtime routines sex is the last thing I think of. Also not to mention one of my sons has ADHD (so homework time takes longer) and my younger son has Autism. So needless to say SEX is the last thing on my mind. It is also difficult for me because my Hubby works out of town/state alot. So when he is home that's all he wants. But, he is great as he reads my body language very well and know when I am not in the mood.

But, I think many women w/ FMS feel the same way about sex.


Stacey373 - January 4

Wow duhda! You and I have ALOT in common! I've also got a kid with severe ADHD and my other daughter is ADD! (my son has very mild ADD too and he doesnt' take meds)

And I agree....I think this is a common problem with Fibro sufferers....


VJackson1982 - January 21

Hi Reychel,
I'm in the same boat as all of you except I don't have any kids. I have no desire for sex what so ever. My now husband and I used to be like rabbits. However when we moved in together, I started getting ill, later finding out it was IBS:( That interrupted our...'bunniness'...which I felt ripped off for. 2 yeas later my hips stopped behaving, later sending me to a Neurologist and now seeing a Rheumatologist. Though I'm quite out of pain, my sex-drive is still gone:(

It also doesn't help that my husband is bigger than me, and my hips are so sensitive that I hurt for days-weeks if we do get intimate. This makes me paranoid beyond belief about having sex because I need to function and can't be stuck with a flare-up because of sex:( It's frustrating!

Luckily for me, my husband is the sweetest and most understanding man I've ever met! I am soooo blessed to have ended up with him, even if the fibro makes our lives sometimes stop at the drop of a dime;) We almost feel like having no sex actually makes us function at a different level of intimacy, and strengthens our relationship. We're very much best-friends with occasional benefits *winks slyly*, but in all honesty, I'd be lost without him:)


reychel - January 23


If you were bonr in 1982 we have a lot more in common... I also dont have kids but lately i have been wondering about it. I am stopping my medication and if I can stay without it for a month or so we are going to think about it. My OBGYN told me that i should have it sooner than later because of the fibro. She said that it will be worse when I get older and it will be difficult to deal with the pregnancy and the life changes after the baby is born... so lets see what its gonna happen.



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