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What made you so supportive?
1 Replies
13tracy13 - January 1

I would love some info from the family members.
I suffer from Fibro and I don't know what to do or where to go so my husband will understand what I am going through, or at least be more supportive.
I posted in the General board, but thought maybe the family members could lend some ideas.
My problem is that my husband has not been 100% supportive since my diagnosis (although I thought he was trying to be) Last night he told me that even though he doesn't doubt my Fibro diagnosis, he is calling BS on the lack of energy and extreme fatigue I feel.
I work full time, have 2 small kids, and I am trying to earn my bachelors degree, he thinks if I have the energy for that then I am find and I use the feeling tired as an excuse. But what he doesn't understand is I don't always have the energy for all that but I still have to do it.
Any advice would be appreciated.


kariered - January 7

My fiance has fibro along with a multitude of other things. He was diagnosed about a year ago. We have been together for 2 1/2 years. I have tried really hard to be supportive towards him. I was with him before he started getting the really bad symptoms and going downhill, so I basically watched him experience it all. It was horrible and awful, not only for him, but for me as well. I know my perspective on it is completely different from his.
Basically I experienced extreme sadness over what was happening to him. The pain, at times, would make him act differently than before. He started spending lots of time in bed--days on end. It was all I could do to get him up.
His family is very unsupportive. They may be in denial over it, I don't know (even though his sister has it too!). His mom is very mean to him and tells him he is lazy and obsesses over how much he sleeps. He was living on his own, but a few months ago had to move back in with her.
I have tried hard to be his advocate at the dr's office and with family and friends. I initially got him to go to a specialist to get diagnosed. I've been researching fibro and learning what I can.
It has not been easy. I have my own job (a middle school teacher) that I cannot quit, especially since my fiance has had to cut back on his work time. He has no health insurance and has medical bills up to his eyebrows. He was hospitalized this summer because of a very serious staph infection. None of his family came to see him.
What has helped me to support him is by learning as much as I can about fibro. I downloaded some podcasts and when I was listening to an actual, real person describe their experiences--that was when I really, finally realized (after several months of reading on this) that a lot of the symptoms are indescribable.
I think it is up to the family to decide when and if they will be supportive. I started thinking and I realized why would anyone want to fake something as extreme and crazy as this??? Who would want to go to all the money and trouble and take the time to go to doctors? It's not because they want to or need attention. If someone wants attention they will find an easier and faster way to get it.
I don't know if any of this helps. But I'm glad if it does. Sorry if I rambled!



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