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Does anyone ever feel like just cutting your legs off?
13 Replies
leslie316 - December 28

I have had FMS, Chronic fatigue, Depression, Memory problems, Fibro Fog, headaches, etc. officially for about 5 months now. My legs seem to hurt the worse. I am hot all the time and nothing seems to help the pain. No one in my household seems to understand what I am going through(my boyfriend and my 17 year old daughter). My legs hurt so bad, I just feel like cutting them off sometimes. It hurts to sit, stand, walk, turn over, be still and I don't know what to do anymore. Neither of them will help me. They won't bring me anything to eat or drink when I don't feel like tackling the stairs to get to the fridge and get mad when I don't feel like taking them somewhere or picking them up. They won't take the time to read up on my condition to try to understand. My ankles, feet, arms, wrists, hands, fingers, hips, sides, neck, back, and shoulders hurt too. I stay in the bed most of the time so they call me lazy. I have gotten them to read that letter to the normals but that didn't even help. I am so fed up. Between being hot, in pain and feeling tired and helpless all the time, getting more and more depressed every day, getting slack from the ones that I love the most and no understanding, I am about to lose it. My main concern is the pain first though. I have tried so many different prescriptions and nothing seems to help. I am starting to think that the only thing that will help is to really cut my legs off. Maybe the pain will go away and my loved ones will "get it" at the same time.


axxie - December 28

Dear Girl no need to cut off your legs, yes, I know they hurt, and you should get up out of bed, I know it hurts, but being in pain in bed, and not doing nothing, is worst than getting up. Actually the pain, should subside with walking a bit more. I know what you mean about taking the stairs, it's hard, I used to walk up the stairs on all four, not fun, but that was the only way up for me.

The secret for your legs, is calcium, and walking, which actually will take away the pain.

I know I must be off but actually it's what you need to do. Never walk barefeet in the house, always have a thick sock on, and never go out with shoes on if there is snow, wear boots.

Have you tried liquid calcium, you take with orange juice in the morning, you should start feeling better after you start taking it for a few days, the pain in your legs should subside.

As for feeling depressed and feeling helpless, unless you make an effort and get up, you will continue to feel the same way, might as well get up and start walking around the house.

Also for your brain fog, I would recommend Purified Fish Oil Blend 1,000mg, one E vit 400UI to help help you.

As for others feel your pain, give it up, unless they can be told by a doctor they will never figure it out. Actually my husband got it, after a doctor who battle fibro when he returned from the front, explained to him how much it hurt, he has a little more support for me since, and yes it does help when they do get it.

Can you tell me on what meds you are on, the kind you take, the strenght and times you have to take, sometime the drugs need some tweaking to be more effective for you.


leslie316 - December 29

I used to take Gabapentin 300mg 2 capsules 3x/day, but that made me gain 60lbs in less than a month with all my other meds. My current meds are morning: Estratest 1.25/2.5mg once daily, Levothyroxine 0.125mg once daily, Cyclobenzaprine 10 mg, Etodolac 500mg.

Nightly: 1 Cyclobenzaprine 10mg, 1 Etodolac 500mg, 1 50mg Sertraline, 4 Topiramate 25mg, 1 Zolpidem 10mg, Cymbalta HCI 30mg, and up to 3 Lidoderm 5% patchesfor 12 hours.

I haven't tried Calcium but I was prescribed 4 vitamin D tablets.


axxie - December 29

Leslie are you taking your vitamin D, if so, you should add a calcium vitamin, they go hand in hand, you will aborbe the D better if you give it some calcium.

Calcium helps bones and teeth stay strong. It is also needed by almost every cell in the body to keep it working properly.

Maintaining an adequate calcium intake is an important step towards good bone health throughout life. The main goal of good calcium nutrition is to maintain an adequate supply so that our body does not have to dip into the reserve of calcium in our bones.

With fybro you are taking the extra supply and you need to replenish it.

Another thing, the oils that I asked you to take, will help you with sleeping better, as you know having a good night sleep is absolutely essential to avoiding depression.

If you can't exercise, then do some stretching the stretching will help loose the some of the pain you have from not exercising.

Exercise is often very difficult with FMS or CMP, your body may be stiff and achy and exercise increase your pain for several days or even longer. Often the pain is so sever that yu cannot tolerate any kind of strenuous exercise. But do the best you can. Be gentle with yourself, mut move whatever part of your body you can move without causing too much pain.

You need to do a little everyday, so that at the end you can say you are doing exercise for 20 minutes, the benfits increase feeling of well-being, reduced of dependence on alcolhol and drugs, and prescription drugs, reduced insomnia, improved concentration and memory, alleviation of symptoms of depression, greater control over feeling of anxiety, increase tolerance to pain.

Hope you try my advice, for a month and then we can recap and see how you feel. It's worth all the effort and worth every penny you spend on vitamins. As all this will give you strenght and give you courage to continue and have the feeling of wellness. It won't take away fibro, that you will live with you, but taking away the pain, is the best feeling you can have.

Have a nice New Year, and hope you feel better in the New Year.


axxie - December 29

Leslie I hope you read this, it's rather long, but worth the reading, I do hope you find some thing to hold on while you go through the journey of feeling better.

Taking the Misery and Mystery out of Fibromyalgia

Fibromyalgia is considered by many to be a fairly new disorder. However, the truth is it has been around for a long time, it is only lately that scientists and medical experts have been able to name this compilation of symptoms and to lump them together under the name of Fibromyalgia Syndrome or called FMS.

To a person like me, who has suffered from this misdiagnosed disorder for more years than I care to count, there was no question that something seriously was wrong with me. For years, like many others, I went from doctor to doctor seeking answers and relief. Instead what I have found was: frustration, misdiagnoses, confusion, insult.

Fibromyalgia syndrome (or fibromyalgia) is a chronic disorder associated with widespread muscle and soft tissue pain, tenderness, and fatigue.

Fibromyalgia has been recognized as a medical disorder only since the 1980s, although there is evidence it may have existed for centuries. Some believe that the cause of FMS is the result of a sleep disorder. In the incidence of FMS research indicates an interruption of the sleep cycle prevents the sufferer from moving from stage 3 REM (rapid eye movement) sleep to stage 4 where the body relaxes and thus tension is maintained in the nerves and muscles. Others indicate that chronic pain keeps one from sleeping and thus exacerbates muscle and nerve tension and manifests depression and anxiety. It is like a chicken and egg kind of event -- does the sleep disorder create the pain or does the pain create the disorder? One of the main contributors to FMS is stress. There is nothing that will cause an FMS flare-up faster than stress in one's personal or professional life.

The pain of fibromyalgia is more than normal muscle aches common after physical exertion. Fibromyalgia often can be severe enough to disrupt a person's daily work and activities. I am often incapacitated for weeks and may have to use a cane to walk. I have known some that had it so severe that a wheel chair was required for mobility.

Fibromyalgia can be difficult to diagnose because its symptoms are similar to many other disorders and diseases. There are no lab tests to diagnose fibromyalgia. It is often diagnosed after other conditions have been ruled out. Fibromyalgia is diagnosed when:

A person has had widespread pain for at least 3 months. To be considered "widespread," the pain must be both above and below the waist and on both sides of the body. In one time of flare-up I was in bed for more than six months.

At least 11 of 18 specific tender points are painful when pressed. (Because symptoms vary widely from person to person, some people with fibromyalgia may have fewer painful tender points.)

Women are more likely to develop Fibromyalgia than men and the average age of on-set is between 30 and 50. However, with age the possibilities increase. However, the onset can be at any age. There is some indication that what used to be called growing pains in children could be a form of fibromyalgia.

At a basic level, most people with fibromyalgia are suffering from diffuse muscle and tendon shortening, driven in part by multiple nerve compressions throughout the spine and limbs. Deep spinal muscles cause deep nerve compressions and traction that cause further muscle problems in the spine, limbs and head. Pain can be directly from the muscles crushing a joint, or from pain referring into the joint from the spine. Typically both exist at the same time. Headaches can exist from referred pain from the neck but also from local muscle problems around the head.

FMS has basically three components, Chronic Pain, Sleep Disruption, and Anxiety and/or depression.

When managing FMS (there is no cure only management techniques at this time) one must take a three pronged attack....

1. Manage and treat Chronic Pain,
2. Manage sleep disruption, and
3. Manage and treat anxiety and/or depression.

While one hopes to be able to work with one's health care provider, it is important for the person who has FMS to develop control over treatments, interventions and management. It is very easy when one experiences such a chronic syndrome to buy into some really goofy ideas for healing and treatment. I am a believer in effectiveness of complimentary medicine and use it in my own treatment plan. However, I also realize the importance of traditional western medicine and medication in the management of my FMS.

I discovered that stretching help with the disorder. And, when I stretched in the morning before I got out of bed, I was able to move with greater ease and, somewhat, reduce my level of pain. I was then able to do other exercise, which was good for me.

The first step to controlling FMS symptoms is to control and manage STRESS. Controlling stress means controlling one's reaction to internal and external events. Meditation is any of the forms available will significantly reduce stress and the pain associated with FMS flare-ups.

While I am all for supplements, if one needs them because of deficiencies, choosing a healthy diet takes care of most deficiencies. A few supplements that I believe help are, Vitamin E, Purified Fish Oil blend, liquid calcium with a vitamin D, MSM and PG Daily from Webber, to help with your blood sugar and weight management. I don’t prescribe and I don’t vouch for any one brand over another. Go to the pharmacy and find the ones you like, I myself go and buy different kinds every time I need to replenish, that way I figure out if one is better than the other and at what price I pay for them.

Anything that reduced inflammation can sometimes help. I have never found relief when I used traditional pain medications such as aspirin, ibuprofen, codeine, and so forth in managing the discomfort of FMS. I have found cold water baths and ice packs will help. Some folks find that heat works better. It is really a personal matter as to which works better.

Natural herbal supplements for depression have had no effect for me. Some people do find relief with the use of St. John's Wart. I say if you are going to take it, make sure it doesn’t interfere with prescribe medication you are taking. I know for a fact you don’t want to have interaction with your drugs and what natural herbal supplement you take.

The most difficult issue facing those who suffer from FMS is finding a correct diagnosis and learning to accept that the diagnosis is real. After years of going from doctor to doctor I had come to believe that my condition was a result of a psychological or psychosomatic disorder. In fact, sometimes when I feel good (like when I remember to take my MSM regularly, reduce my stress, stretch and move and do happy things) I think that my FMS is all in my mind. However, when the flare-up occurs again and I am bent over in pain I realize that it is not an imaginary disorder and I get back into my mode of controlling my FMS.

As a final note, if others do not understand that you are suffering from real pain and discomfort it is important to take note of yourself from their point of view. If you are the "average" FMS sufferer you probably look very healthy. It helps when those in your personal world are sympathetic and understanding of your condition. Proactive approach and educate those who are close to you about the realities of FMS. If they are openly disrespectful and do not want to be supportive of your condition and you have been unable to cope with their behaviours, consider taking a course in assertiveness training. The skills learned in a course like this will help you take control of your life and your disorder and empower you when dealing with family, co-workers, and health care providers. Remember, only you know how you feel. Do not negate your suffering or your pain or you path to a healthier and more comfortable life by using the uniformed feedback of those who do not really understand FMS.


leslie316 - December 29

Thank you axxie. I am going to talk to my doctor about the other medicines you mentioned. I am thinking about going to one of those fibro and chronic pain clinics to have a free evaluation too Have you ever been to one or know of anyone that has been too one?


axxie - December 29

Leslie, I have been to one, and they wanted to me to spend lots of money to get test, that wasn't really necessary that your primary physician can do.

It's what they do with the result and if they are willing to send you to a specialist to help you is what matters.

As for fibromyalgia clinic they will ask you for money for tests, your doctor can do for free but one thing they might have, is councellor that you can go see and talk about how fibro is affecting you and may even give you ways to combat the stress and probably a food counsultant and stretching excercise that you can do.

The way I see it, you know all that, do a little research and try it and see if you can keep up with it.

One day you feel well, you stretch and you get up, if the next day you feel you need to rest, you rest and then if you can get up and do some walking about in the house than that's good.

Or maybe what you need is to go to a clinic for the support, but do go see your doctor and see what he says.

Anytime you want to tak, just put in a message for me in the subject line and I'll answer you.

Good luck to you, you have done the biggest step to your recovery, by replying and asking question, now the easy part is about to start... get relief and get well so that you can manage your life a little better, one step at a time.


leslie316 - January 1

Hi axxie. I hope you had a Happy New Year. I wish you all the best. I have been having issue after issue. It seems like something hurts more and more every day. Nothing stops hurting, things just get worse. My shoulder has been giving me a fit. It feels like it has been (can't think of the word right now) but pullued out of the socket. I have been having sharp pains shooting through my knee along with the constant pain.

I have a new pain today. I don't know if it has anything to do with FMS or not, but I have a pain in my throat. My lymph nodes are swollen on the right side and there is a pain like no other to swallow. The pain is only on the right side and middle. I have been having a lot of, I guess like heartburn, lately. Burping up stuff with burning, unable to lay down due to burning. I'm not too familiar with heartburn, I'm guessing that is what it was. Do you know if that has anything to do with FMS?


Fantod - January 1

leslie316 - I totally agree with Axxie. Don't waste your money or time by going to one of those fibromyalgia clinics. They generally want a lot of money and don't really do anything different than a good rheumotologist will do.

GERD is one of the many "perks" associated with Fibromyalia (FMS). Many of us are on medication like Zantac,Prilosec or Nexium for this issue. You should see a gastro specialist and get on medication. Stomach acid can make a real mess out of your throat over the long term. In the interim, either put the head of your bed up on blocks or use two pillows to keep you head higher than your stomach when sleeping.

You should take some time to read through the blue boxes on the lefthand side of this page. Especially the associated conditions. Knowledge is power.

I don't think that your swollen glands and the GERD are related. You have two different things going on. Sounds like you are coming down with something to me.

Take care and Happy New Year to you too!


Fantod - January 1

leslie316 - I wanted to mention a couple of other things. After five months, you should be in a batter place than you are now. I'm thinking that you need a second opinion and to see a pain management specialist. You can call your local hospital and ask the for physician referral service. See if they can match you up with a pain specialist and another rheumy with an interest in FMS. You can also go online to the National Fibromyalgia Association website and see a list of fibro-friendly health care professionals in your area. I think a second opinion and a complete reveiw of your meds would be helpful. You have to be your own best advocate when it comes to dealing with FMS.

As for your boyfriend and daughter's behavior; it is disgraceful. I think that you need some extra support since you are clearly not getting any at home. I'd like to gently suggest that you consider finding a counselor who treats chronic illness patients. The hospital referral service should be able to match you up with someone who uses cognitive behavioral therapy.

Good luck to you. You are not alone. Wishing you a peaceful and healthier New Year.


axxie - January 2

Leslie, happy belated New Year to you, sounds you are really going through the wringer.

Lymph glands, if they are swollen, are usually indication that you might be coming down with something, if you haven't been feeling well, and are having chills maybe you should go see the internist, they can also do a swab and see if you have anything contagious.

As for gerd, with the amounts of medication we all take, is usually because of hartburn, there also the way we eat, and if we lie down right after we eat, or we eat too spicy, again when you see the internist ask to get something to help you, if none of the off the shelf works.

You know I was looking at the list of medication you are taking, and I really think it's time they start tweaking the medication to fit you better.

Especially that you have such pain, and it's not letting go, have you ever taken, Savella, Cymbalta or Lyrica, maybe when you see your pain specialist, they can maybe prescribe some of those to help you.

There are many different types of medication that help alot of people, it's just I find you have plenty of medicaiton, either they up the doses or they try something totally different on you.

It's worth a shot, to see your specialist and tell him that you are in real serious pain, and that even thought you are trying to your best, do help yourself the amount of drugs you are taken doesn't amount to much on pain relief.

I am truly sorry that you are going through so much at home, you probably feel like a prisoner in your home with the boyfriend and daughter who are the warden and are making you feel cheap. If you can go see someone to talk, sometimes that is what we need to feel better oneself is to go talk to a professional that can hear you and give you advice on how to handle the ongoing on with your pain and the way you are being treated.

You now doubt, need good restful sleep and it's probably not coming, maybe a sleeping aid would help you.

Can you describe your pain to your specialist adequately so that they know how it feels to be in pain 24 hours a day. Can you also describe the feeling that comes with the pain, which also reinterates your pain where they really get it.

My pain in my shoulder feels like a hot blade p;enetrating my muscle and it's come on while I am relaxing and the pain is making me feel that my meds are not controlling my pain very well, I feel sad and I sometimes cry because I can't find any relief.

That is just an example of what you can say to your specialist, also ask them if they can send you to see a counsellor or psychiatrist who can deal with pain.

Pay special attention to yourself and forget the gang at home, you have to take care of yourself and you are the only one who can help yourself to feel better.

I hope you get some relief soon. Like I said, you need to see your specialist and ask a revision of your pain medication because what yo have doesn't work and you are in constant pain.

Good luck to you girl, take the first step and talk to your specialist..... Now that the breaks are over it's time to call and make an appointment.


Auvonto - January 3

wow leslie316 your pain sound like mine. I'm sorry that your loved ones dont get it. once they start to hear about this more then they may start to say ok this is really something. alot of times people need proof from someone else to believe. it takes time for us to find something that works and even then it may be only for a short time. but hang in there you are not alone. when you need to come on here and vent or ask questions. I hope things get better real soon.


leslie316 - January 15

Thank you all for your support. I don't know what I would do without you. Now to add to the pain, I am having a problem breathing. I huff and puff all the time. I can just be talking and someone will say "why are you breathing so hard?".I have the print of the heating pads on my legs. I have started having sharp shooting pains in my hands and wrists, ankles, knees, and feet. It seems to be something different every day but nothing else goes away.


lindauk13 - January 16

i have only had fibro for 2 years and i feel exactly the same kids wont help me either i just want to end it all cant take it anymore cant do anything im just lying in my bed all day its been like this since christmas i cant walk anywhere either in so much pain



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