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Have you ever felt that you could just give up?
6 Replies
lauribentley - January 13

Hi all, my name is Lauri, I have been diagnosed with Fibro after over 3 years of misdiagnosis, similar to the rest here I guess. I have two children and now I am living in the UAE. I feel so tired and weak sometimes that I think I might be better off dead, sometimes I do even feel I am dying. I have been diagnosed here, and my Dr. a thematologist is great, when it comes to medication I am in the middle of nowhere. He gave me Inderal, wich is for migranes and it works but for my pain nothing, nothing at all. Whe tested for Fibro I tested high in all points and the Dr told me that is was really bad in my case and I also have severe TMJ. Now I am also getting reflux.
Has any of you out there ever felt so low? I feel 1000 and I am 30, four years ago I used to be so alter, so buzzing, now, I just hate myself.


Auvonto - January 13

we understand what you are feeling. we have to keep on going. I was in such a stupper yesterday that i just couldnt stand myself. some days or even weeks are like that. as hard as it may seem we have to keep our heads up and keep it moving we cant let this FMS beat us. We have to be strong!! dont let it beat you. please we are here for you as much as we can be. [[gental hugs]]


Fantod - January 13

Hi Lauri - Welcome to the board! All people with FMS experience low points. You are certainly not alone in your feelings.

In reading your post, it is very clear to me that you don't understand this syndrome or how to treat it. I am going to give you a crash course on Fibromyalgia (FMS).

Fibromyalgia (FMS) is a disorder of the central nervous system which causes widespread chronic pain. It is correctly referred to as a syndrome. The mechanism that causes it is not understood. There is no cure but it can be managed with certain classes of prescribed medication. OTC remedies do not work for the type of pain associated with FMS.

Fibromyalgia is recognised by the National Arthitis Foundation, the World Health Organization and the Centers for Disease Control.

Take some time to read the information in the blue boxes on the lefthand side of this page. There is a lot of good information there. Knowledge is power.

The doctor best suited to treat FMS is a rheumotologist. Have you been tested for a Vitamin D deficiency? This is done with simple bloodwork. Another option is gluten sensitivity. The most accurate result is obtained using a stool sample. Either of these issues will also cause widespread pain.

Using Google, I found that there is a rheumotolgist in Dubai that treats FMS: Humeria Badsha at the Dubai Bone & Joint Center. Phone: 971-4-423-1400. Your current doctor clearly has no idea how to properly treat your medical condition. You deserve and should have a better quality of life. If travel is required to see this doctor, than do it. You have to be your own best advocate when seeking proper medical care for this syndrome.

The three prescribed medications used to treat FMS are Lyrica, Cymbalta and Milnacipran. Cymbalta is an antidepressant which addresses both the pain and depression that usually accompanies FMS. Lyrica is advertised on TV in the USA all of the time. Some people experience weight gain with this drug. Unfortunately, most doctors do not seem to be proactive about trying something else when this problem becomes apparent. Milnacipran has been used in Europe for decades to treat FMS.

When you are on a proper drug regimen for FMS allow some time for it to work. The longer a chronic pain cycle continues, the harder it becomes to manage or stop. It could take as long as a month before you notice any difference. And, some adjustments may have to be made with reagards to dose etc. Don't stop any medication without talking to your doctor first.

One of the reasons that you are so sore is lack of restorative sleep. FMS interrupts the deep sleep cycle with short bursts of high intensity brain activity. Your muscles require deep sleep in order to repair themselves from the days activities. No deep sleep means higher levels of pain which rapidly becomes a vicious circle. You should be on a sleep aid. Amitriptyline (Endep) is usally prescribed for FMS patients. Addressing the sleep issues associated with FMS is a crucial part of treatment.

Go to Amazon and order "Fibromyalgia for Dummies." Like all of the Dummies series, it contains good basic information. Read it yourself and pass it along to friends and family members. You can also go online to the National Arthitis Foundation website and use the "search" function to find the information on FMS. Send people a link so they can learn about your condition.

Diet is very important with FMS. If you use anything containing an artifical sweetner get rid of it. If you need a sweetner use something made from the nontoxic Stevia plant. If Stevia is not available in the UAE, than it can be ordered online. Deep fried foods, lunchmeat and red wine (nitrates) will also ratchet up your pain levels.

I have TMJ (now called TMD) myself. I am very familiar with the myriad of problems that it can cause. TMD causes severe headaches (your migranes??!!), balance problems, nausea, and back, neck, shoulder, arm/hand pain. You are probably detroying your teeth by grinding and clenching. You need to have a bite splint made by a knowledgeable dentist. The splint is worn at night to relax your jaw and keep you from further ruining your teeth. using Google again, I found that the American Dental Clinic in Jumeirah, Dubai has someone on staff who treats TMD. Phone: 04-344-0668.

Also, see a gastro specialist about your reflux. This is a very common problem among people with FMS. It can be treated with an OTC remedy but you should have it checked nonetheless.

If you are having problems coping with your illness, I'd like to gently suggest that you consider seeing a counselor for extra support. Ideally the counselor should be someone who treats people with chronic illness. Many of us see someone to help us cope with FMS. You should try to find a counselor who uses cognitive behavior therapy to help chronic illness patients.

I know how frustrated you are with all of this. I feel like an ongoing science project most of the time. You've come to the right place. We have a good group of people on this board who will step up to answer questions and lend support. If you are on Skype (Internet phone provider) we can talk one on one. Skype calls are free to other Skype users anywhere in the world. All you need is a microphone and a computer.

I hope that my comments are helpful to you in some way. You are not alone and we welcome your participation on the board. Take care and keep in touch.


MechelleH - January 17

Hi all, i'm having one of those days where i feel i could just give up! I have a full time job and really cant't cope anymore, i'm sore and i keep falling asleep at my desk which is never a good move in an open plan office! some days i want to just close my eyes and not wake up!



lucyvanpelt - April 24

Hi Laurie!
I am a resident of Dubai - have been here for one and a half years. I am a fibro veteran of 26 years and have had my ups and deep downs. The first step is to find a doctor who is understanding. I found Dr. Humeira Badshah through a magazine article and she has been a great support. As part of the Emirates Arthritis Foundation, we do have off line support activities. I am the only one with Fibromyalgia and the others have Rheumatoid Arthritis. We have twice a week yoga /movement sessions . I have found yoga very helpful in my tryst against fibromyalgia. Through Dr. Badshah - I was introduced to a powerful technique called Neuro Structural Integration Technique. I have my sessions at Mediclinic City Hospital - at the physiotherapy department and NST has been amazing. I can finally sleep much better and hence am more productive during the day time. The support group also helps as we truly understand each other - all of are at different stages in life and we cope differently. It helps when we meet for classes and hear each other's stories. All of us have understood the link food has to our health and each of us in our own way have made some changes to our diet.

I have been at that stage when I had a full time job + a child + a house + social obligations. I have learnt now to pace myself and am at a better space.

I will be happy to share more details on a personal mail - if you so wish.

All the best ! And hope you feel better soon..


Yola1965 - August 28

Hi Laura....I'm 51 I've had fibromyalgia since 27 after and accident. Trust me life was upside down. A new baby at 25 and a new wine when I was 29. I was in and out of hospitals for anxiety pain depression. I still go through everyday. It's tough it debilitating and yes you feel like your family and friends don't understand. I cry to bed and no medication can help me since my stomach is very sensitive. I will help you. I'm in Brampton, Ontario. If you want to talk privately. Let me know


Saba - October 11

Hi lauri.
Im a new member on this group. Recently diagnosed with fm. I really need to talk to someone. Can we talk on email or phone if possible.



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