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When the world slams the door in your face ...
5 Replies
t3apps - April 19

I was just advised by my immediate supervisor that his manager told him to start processing an unsatisfactory performance/leave abuse letter. Essentially, that means that my paycheck goes down to between 10-50 percent of what I would normally take home - based on whatever hours I manage to work. Also, no more telecommuting, so I actually have to make it into the office (38 miles, I work in downtown Washington DC), manage to work and then make it home. I'm sure that commute will be fun with FMS and Vertigo.

In fairness, they have been very accommodating for the past 19 months, but this hasn't even been mentioned in over 8 months.

I guess I'm going to have to bite the bullet and quickly fill out the medical retirement documentation, both for my job and for Social Security (my job requires SSDI application, even if I know I won't be eligible), and get the documentation from my doctors. Unfortunately, I am looking at between 3-6 months for each of them (SSDI and work) to make a determination, and if it is negative, then start the appeal process.

I guess I could go against doctor's recommendation and go back to work full-time. What's the worst that could happen? I probably don't want the answer to that question.

Anybody have suggestions on how to cope with this additional stress? Any positive stories?



Jocelyn - April 19


I am so sorry to hear what is happening to you. I hope you don't work for the same company that I do. We have a Corporate Office in Washington DC and one in Bedford MA. I can't mention my companies name publicly because we are not allowed to.

I hope you company will accept your doctors diagnosis and continue to work with you. If you can't be employed then Social Security needs to step up to the plate. Please read some of the threads pertaining to getting on Social Security.

I don't think I can help you, but hopefully, someone else will see you plight and jump in. I though that 6 months out of ever year, no matter how one takes it for illness is allowed without one losing their job. I didn't think they could do that to you since you are still doing work for them. I also thought you could not be layed off if you were out on any type of disability. Maybe your doctor can put you on disability if you are not already on it. Long Term! Check with your HR department too.

Best to you, I am so sorry to here this.


t3apps - April 19

I can't say who I work for either, but I can say I'm a federal employee - they have all sorts of special rules and regulations. You would think that 20+ years (21 on 7/1) would get me something, but I guess that is what carried me for the last year and a half. Except for the initial flare in October 2010 and the last 2 weeks, I worked at least part-time each week - how much varied with what I could handle physically.

My fiance called me with a "verbal hug" which was much appreciated, but it is still very frustrating to be sitting here and not able to fix things.



Jocelyn - April 19

Hmmmm, I'm a federal employee too, isn't that interesting. It would be funny if we both kew each other. Anyway...please let me know how you make out. I would think after almost 21 years of service they would understand that something is going on with you and give you a break. I hope they give you a great package. Since you have worked there almost 21 years, I am guessing you are close to retirement age?? You may have mentioned your age on another post, but I don't remember. I am 56 and need to work until I am at least 62 and then hopefully, I can retire and afford to keep the insurance going until I can get onto Medicare. It is an awful situation that we are all in!


t3apps - April 20

Jocelyn -

I'm only 43 (44 in a couple of weeks), so even with 21 years of service, I'm still at least 13 years from a normal retirement. I looked at the regulations for a medical retirement; but when I tried to explain it, I found that I didn't have the grasp I thought I did.

FMS is exhausting physically and frustrating emotionally. I know that there are many diseases that cause similar symptomology - but most of the ones I can think of have a treatment plan that works for most sufferers.

Maybe we should all join together and try to get more funding for research?



Jocelyn - April 21


Wow, you are still so young, and have so many years to work ahead of you. You really need to get someone who can understand your medical retirement paper work, maybe a lawyer could help you.

Yeah, I work for a FFRDC....since they fund for everything else to be researched, I wish they would fun for fibro research!!!

Do you have any friends that can help you out? What about your doctors. FMS is, like you said, exhausting physically and mentally and creates more stress than what we already have in life. FMS makes everything more difficult.

Keep me posted, Lisa, and best of luck to you.



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